philiphughes.com Blog

Been having a flare up for about two weks. Burning skin around head and neck, pain as well. Upped my steroids to 25mg a day and got a 100mg bolus. Hope this stops soon…not fun or good at all.

The divorce was final today…

Been a while but all is good. Fistula is ready to use and am feeling good. Started taking 1800mg of colostrum twice a day starting on the 4th of Jan. Seems to be doing something already as I was feeling a cold and allergies yesterday and today all is well. Mom has a bad cold and my son had a stomach flu and I have not had either. Pretty good since my immune is so suppressed from my meds. Have a great day and weekend and God bless!

Hope everyone has a wonderful Thanksgiving! I am cooking a 20 pound bird in my Orion cooker and it is going to be awesome! 4 pumpkin pies made and banana pudding. God bless you all,

Beautiful today. Arm is healing nicely and ibuprofen is hardly needed! Woke up this morning in a major fog so I went back to sleep. Seems much better now Hope y’all have a great holiday and God bless!

Treatment went ok but i feel crappy. Had to hassle with Byrum healthcare about my bill and bla bla bla any got it fixed for now. I feel really lethargic and crappy, lol Oh well tomorrow will be a better day. God bless.

Surgery went well…just pain and swelling now. Got some vision back in my right eye! Just a tiny bit and all I can think of is that they gave me a 100mg rescue dose of steroids during the surgery. Thank you God! I asked my surgeon to take some OR pics for me and he did. I will post them God bless.

Will be there at 7:30 surgery at 9:00. Should be about a 4 hour surgery. will stay there 3 to 4 days. They are going to place a new fistula in my right upper arm. Hopefully it will take and mature and I will be able to use it in 3 or 4 months. Hope y’all have a great evening and God bless!

Went in for my treatment and it all went well. Had 3 Texas State University nursing students observing how to do plasma pheresis so that was fun. They are always impressed with how much I know about things but when you have been doing it for over 2 years you tend to absorb it all. Also got the report from the radiologist and it said my perm cath was not in the way but my veins are still small so it will be harder for the fistula to mature…but its all we got to work with so we will move forward. The surgery might get moved to Friday but I have not heard anything yet so maybe it will still be on Thursday. Hope everyone has a great day and God bless!